Emily Jane, Spreading HOPE for Julia
“Julia lived and loved on this earth for only 20 days after birth, August 8-28th 2002 yet she has gifted us and continues to gift us more light than any other being and she has taught us more about loving in this world of impermanence than anyone else—an amazing gift from this tiny being who never spoke.
Through Julia’s brief lifetime we believe in the 🦋butterfly effect; how a small gesture of kindness can amplify into an infinite, immeasurable influence of love and light. 🌀
My eternal connection with Julia has only strengthened over the years and she has now become my muse. I write a new poem as a prayer daily as a healing~spiritual practice at spiralsofhealing.org (below are a couple of recent poems reflecting on her legacy of love and joy— gifts bestowed only through loss).
No parent should ever have to outlive a child, yet even with modern medicine sometimes we do and the recovery from this profound suffering is further challenged by the social isolation in our society that still exists around pregnancy, neonatal & infant loss. No parent should ever have to navigate child loss alone, and RTZ hope is here to offer support to any grieving parent and to shine light and compassion on this unfortunately common private suffering.”
Pregnancy and infant loss is an unique type of loss, leaving the grievers to feel isolated and unsure of how to move forward. We'd be grateful if you you would consider making a contribution to Emily Jane’s fundraiser in honor of Julia. Your gift ensures that other parents who endure loss on their journey to parenthood have the support, resources, and community they need in order to navigate life after loss.
With your support, here’s what we were able to accomplish during 2022 (2022 Annual Report):
Fifty percent of support group participants received financial support to ensure that all parents have access to services.
Enhanced outreach to and created support services for Black, Indigenous, and other Communities of Color as a response to the alarming rate of preterm births and stillbirths caused by racial disparities in perinatal and infant health.
Offered 50 different support group programs (virtual workshops, virtual support groups, and in-person retreats) to our community of bereaved families.
Supplied our unique perinatal bereavement guides to 400 hospitals and providers to assist in caring for grieving families.
Hosted 10 perinatal bereavement education webinars to parents and providers.
Created community and spread awareness about pregnancy and infant loss through social media.
Ghosts
From the tower, OH my view
Becomes an altered life review
In the hospital tower of another
The NICU that held my daughter
From the tower here heightened
Reflections of my past brightened
Spinning, churning, circles of time
Of a precious unlived lifetime
From this tower as my host
A meeting of a different ghost
The ghost of me, once alive
Breathing here, to survive
To survive what my child couldn't
To live in this world of I wouldn’t —
Wouldn’t see her first steps
Wouldn’t know her favorite toys kept
Wouldn’t feel her hands in mine
Wouldn’t brush her hair to shine
Wouldn’t face the tantrum on floor
Wouldn’t negotiate candy at store
Wouldn’t find her hiding in nook
Wouldn’t push her to read this book
Wouldn’t wait worried at midnight
Wouldn’t wonder what her insight
Wouldn’t hear her call me mother
Wouldn’t watch her marry another
The ghost of me, now speaks
Echos, in altered path of tweaks
Yet the spinning circles of time
Shows me over & over HER Divine
From this tower high above
Churning, turning, always with Love
—Reverent emilyjane
Unwavering Enthusiasm
When I conceived my son
Six weeks after my daughter died
I felt an immaculate conception
A pregnancy of push from beyond
Not that I didn’t want this Life
Not that I wasn’t deeply hopeful
Yet I couldn’t believe it
When he was born healthy before
The first anniversary of her death
I felt the holy birth of impossibility
A living baby from the miraculous
Not that I didn’t want this Life
Not that I wasn’t deeply hopeful
Yet I couldn’t believe it
When he was almost a year old
I felt I could finally “baptize” him
With a baby naming ceremony
Acknowledging his aliveness with community
Not that I didn’t want this Life
Not that I wasn’t deeply hopeful
Yet I couldn’t believe it
When he was almost two years old
I felt his two spiritedness;
His extraordinary Aliveness
pushing through from beyond
His enthusiasm for Life
so far outreaching mine
As if his late sister’s soul
had hitched a ride back in his heart
Not that I didn’t want this Life
Not that I wasn’t deeply hopeful
Yet I couldn’t believe it
Couldn’t believe I would ever
feel the Joy of being alive again
after the death of my daughter
Immaculately
Spectacularly
Miraculously
My son’s enthusiasm
healed my broken belief of heart
Enthusiasm from “enthousiasmos”
meaning possessed by God
His possession coming
through me from beyond
Not that I didn’t want this Life
Not that I wasn’t deeply hopeful
Yet I couldn’t believe it
Until the miracle happened
In my own blood,
In my own holy water of
Deliverance—
by the enthusiasm of my little boy
For this life,
For this hope
For this unwavering belief
His belief now my belief
Born only through my broken openness
My unwavering belief in Joy
—Reverent emilyjane